Here is a video we want to share of Angela on the stairs. It was so exciting to watch her tackle the stairs on her own without any help. The stairs are a difficult and dangerous task for Angie because she has little control over her movements and struggles with motor planning. We are so […]
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This is the first Thanksgiving since Angie’s diagnosis. We wanted to take this time to express how incredibly thankful we are for the family and friends that have been our support system since day 1. We are also thankful for the new friends we have made since July- families also within the Rett Community who […]
Last Monday, we were blessed to meet Kristen and Shawn Connor, whose daughter, Brynn, also has Rett Syndrome. Kristen and Shawn have been helping us with planning our own fundraising event (est. October 2018). As many of you know, one of the biggest goals for the Rett community is to raise awareness of Rett Syndrome […]
We headed out to Montefiore Medical Center in the Bronx to test drive Angela using Tobii in hopes we can eventually improve communication with her. Watch the video below.
